The burden was too much for her when she was diagnosed with stiff-person syndrome

Rolling Stone

Celine Dion said she decided to publicly share her Stiff Person Syndrome diagnosis after months of feeling like she was lying to her fans by keeping the condition to herself.
‘I have…’ what?” Dion said.
“We did not know what was going on.” Stiff Person Syndrome — which has kept Dion from performing over the past several years — can cause stiffness in the body and limbs, as well as debilitating spasms.
The upcoming primetime special will mark Dion’s first broadcast interview since she was diagnosed with SPS in 2022.
But the singer said she first started experiencing symptoms of the disorder during her Taking Chances World Tour in 2008.
“I had to raise my kids, I had to hide.
“Lying for me, the burden was too much.
“It’s like you’re talking like that, and you cannot go higher or lower.”

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Following months of feeling as though she was deceiving her fans by keeping the illness a secret, Celine Dion said she made the decision to publicly disclose her diagnosis of stiff person syndrome.

The singer confirmed that she first kept quiet about the uncommon neurological ailment because she was still trying to comprehend and process what was happening with her health and what her future might hold in a new clip from her upcoming interview with Today’s Hoda Kotb.

“What was the intended message for me to convey? ‘I have.'” Dion asked. What was happening was unknown to us. “.

Dion hasn’t performed in a few years due to Stiff Person Syndrome, which can result in crippling spasms and stiffness in the body and limbs. Dion will do her first broadcast interview following her SPS diagnosis in 2022 during the forthcoming primetime special. However, during her 2008 Taking Chances World Tour, the singer claimed that she initially became aware of the disorder’s symptoms.

“I did not take the time I should have stopped, take the time to figure it out,” Dion said, adding that her late husband René Angélil was “fighting for his own life” during treatment for throat cancer when she began to notice the early warning signs of her illness. “I had to hide and raise my children.”. My task was to attempt to be a hero. “.

Dion said she was having trouble “feeling my body leaving me, holding on to my own dreams,” revealing some of the anxieties that were whirling through her mind at the moment. “.

Dion eventually felt compelled to come clean because the illness kept getting worse. “I lost the ability to perform this,” she uttered. The weight of lying for me was too much. I was no longer able to lie to the people who helped me get to where I am now. “.

When Dion performed, she said it was like having someone strangle her. This is an excerpt from a previous clip from Dion’s interview with Kotb. “.

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Dion added, putting her hand to her throat, “It feels like someone is pushing your larynx, pharynx this way.”. “It sounds like you’re speaking in that tone and are unable to change it. “.

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